The following is a list of downloadable RTC/IL documents, which also are offered in alternate formats. ( View Policy on Insuring Access to Information to learn more about our publication accessibility.)
Also view What CILs Need to Know About People With Chronic Fatigue Syndrome, What CILs Need to Know About People With Fibromylagia, and What CILs Need to Know About People With Multiple Chemical Sensitivity.
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ACCESSIBILITY
Removing Environmental Barriers: Independent Living for People With Psychiatric Disabilities
In this webcast, researchers discuss their project focused on helping people
learn about grocery store use and providing them with adaptations. Presenters:
T. Brown, M. Rempfer, and E. Sheils
ADVOCACY
Action Letter Portfolio
This self-administered training
manual designed to teach people with disabilities and others to write effective
advocacy letters contains worksheets, exemplary letters, a reference section
with information on disability policy, and information on analyzing disability
concerns. Authors: G. White, D. Nary, R. Allada, K. Golden, R. Thomson,
and K. Froehlich
Advocacy Skills in Action
Advocacy groups can assign
individuals to monitor community events and report relevant issues back to the
group, which then holds meetings to analyze issues, plan appropriate actions,
stimulate commitment for implementing projects, and review the results of their
efforts as described in this RTC/IL Forum newsletter article. Authors: F. Balcazar and T. Seekins
A Guide for Personal Testimony: The Art of Using Your Personal Experiences to Influence Policy Decisions
Because the quality of life in any community
is partially determined by its laws and policies, this booklet shows how to
testify to help those making decisions understand issues in personal terms.
Authors: T. Seekins and S. Fawcett
A Guide to Writing Letters to Public Officials
Expressing your opinion can influence decisions
made in your community, and this booklet explains what, why, and how to write
letters that can make a difference. Authors: T. Seekins and S. Fawcett
A Guide to Writing Letters to the Editor
Learning how to write a letter to the local
media as illustrated in this publication can make a difference in issues concerning
you. Authors: T. Seekins and S.B. Fawcett
A People’s History of the Independent Living Movement
A who’s
who of advocates starting with Gini Laurie, this lively history chronicles the
independent living movement through those who campaigned for disability rights
and services. Author: C. Levy
Communication Skills Smooth Way for Advocates
The guidelines presented in this RTC/IL Forum article characterize successful advocacy efforts. Authors: T. Seekins and F. Balcazar
Group Takes Action on Parking Problem
To solve the problem of handicapped parking
experienced by citizens with disabilities, an advocacy group devised a successful
action plan described in this RTC/IL Forum article. Authors: Y. Suarez de Balcazar and S. Fawcett
The No Know Way Guide
Offering practical information on understanding
why research is useful, this resource booklet describes what research is and
teaches readers where to find research information and how to use it. Authors:
K. Klatt, R. Martin, R. Buchanan, and G.W. White
Taking Action on the Issue of Handicapped Parking
Based on the experiences of several communities in discussing parking and a year-long action project by a Consumer Advisory Committee in one of the cities, this guide describes a method to help consumers act on local handicapped parking issues. Authors: Y. Suarez de Balcazar and S. B. Fawcett
EMERGENCY AND DISASTER PREPAREDNESS
Assessing the Impact of Hurricane Katrina on Persons with Disabilities:
Final Report
This report describes research findings
from a Gulf Coast study detailing the response of the disability community
to Hurricane Katrina. Authors: G. W. White, M. H. Fox, C.
Rooney, and A. Cahill. Also view Executive Summary.
Individual Disaster Preparedness Community Disaster Preparedness
Order these 18 x 24 posters at http://www.nobodyleftbehind2.org/findings/NLB_order.shtml
Tips for First Responders
An
11-page, color-coded, laminated 4.5 x 5.5-inch field guide, this publication
offers information on assisting persons with a wide range of disabilities,
including seniors, people with service animals, people with mobility challenges,
people with mental illness, people with visual impairment or blindness,
people with deafness, and people with cognitive disabilities. Order at http://cdd.unm.edu/products/TipsForFirstResponders.htm
Also see http://www.nobodyleftbehind2.org/resources/
EMPLOYMENT
Learning Job Finding Skills
Although dated, this manual provides
detailed instructions, examples, study guides, and practice situations,
and feedback mechanisms applicable to finding, applying, and getting a job.
Authors: R. Mark Mathews, P. Whang, and S. Fawcett
FULL PARTICIPATION
Full Participation in Independent Living: Are We Making Progress?
An overview of the NIDRR-funded Research
and Training Center on Full Participation in Independent Living (RTCFPIL)
at the University of Kansas is discussed in this webcast in addition to
preliminary data from its first three research projects. Presenters: G.
White and D. Nary
Advocacy and Research for the 21st Century: Interviews with Key Disability Rights Informants
Through
30-minute telephone interviews, key informants with 16 disability advocacy
and research organizations — half were visible leaders in
shaping national disability policy during and after passage of the ADA,
half were state and local leaders who represented constituencies who had
not had a visible presence at the national level — discussed
their top five research and advocacy priorities for the next ten years in
this report and how they thought research could advance the disability advocacy
agenda. Authors: B. O’Day
and M. Goldstein. View at http://www.rtcfpil.org/training/RTCtraining3.shtml
One-Stop Center Training Series
Divided into sections, this manual includes
One-Stop information for centers for independent living, outreach to
underserved groups, staff development for One-Stops, using mystery customers
to assess One-Stop services, and newsletter articles for use. View at http://www.rtcfpil.org/training/RTCtraining4_5.shtml
Tribal Disability Concerns Report Method: Respecting Sovereignty and Building
Describing a process to identify and involve American Indians in research
and to address their tribe’s issues, this report presents and overview
of the process, examples, and additional resources. Author: H. Scalpcane
Training Consumers with Acquired Brain Injuries to Serve on ILC Committees
and Boards
This manual explains how a meeting is run and the various tasks
that go into making a meeting productive. Authors: K. Froehlich, G. White,
and R. Gutierrez
HEALTH ISSUES
Taking Charge of Your Health (in Spanish)
People with disabilities face health challenges addressed in this lively booklet that also offers information on daily health choices and medical rights. Authors: K. Froehlich-Grobe and X. Ilabaca-Somoza
Executive Summary: Developing an Action Plan to Improve the Quality and the Quantity of Data About Paralysis.
These recommendations focus on methods to collect information on paralysis. Authors:
M. Fox, J. Rowland, D. Vernberg, K. Grobe, G. White, & A. Rosdahl.
Spinal Cord Injury: You Do Have Choices
This resource manual presents information
that will allow SCI survivors and those close to them to be informed about
acute care and the rehabilitation process and to have some sense of control
over their life.
Health Promotion for Persons With Disabilities and Prevention of Secondary Conditions: Executive Report
Results from this randomized-controlled clinical trial that assessed the effectiveness of an intervention over six months to promote physical activity by women with mobility impairments are presented in this report.
Exercise for People With Disabilities: Getting Started on Your Fitness Plan
With useful
strategies to become more physically active and ways to eliminate barriers to
exercise, this manual discusses the five activity categories—aerobic exercise, muscular strength and endurance, flexibility, weigh-bearing exercise, and skill-related exercise—and
what can be done for exercise in each area. Authors: K. Froehlich, S. Figoni,
T. Chase, L. Gonzales, C. Thompson, D. Nary, and G. White.
Home Physical Activities Programs for People With Physical Disabilities
Shown in this how-to guide is what you
need to know to devise a low-cost, home-based, customized physical activity
program for people with physical disabilities to boost their endurance and
strength for independent living. Author: D. Nary
In-Home,
Physical Activity, and Independent Living: What’s the Connection
Specific research projects involving home physical activity programs are discussed
in this transcript of a 2002 webcast. Presenters: Katherine Froehlich Grobe
and Dorothy Nary
Living by Chance Not Choice: Stories of Kansans Affected by Budget Cuts
This booklet contains the stories and photos of 35 Kansans with disabilities and explains how cuts to Medicaid HCBS programs and other services endangers the independence, full participation, and in some situations, the lives of people with disabilities. View at http://www.silck.org/LBC1.htm
Partnering With Public Health: Funding and Advocacy Opportunities for CILs and SILCs
A former director of the Office of Health and Disability at the Massachusetts Department of Public Health, discusses how CILs and SILCs can use funding from the Centers for Disease Control and partnerships with public health agencies to provide innovative programs promoting the health of people with disabilities. Author: L. Rauscher
Pressure Ulcer Review: Selected Annotations, Critiques, and Bibliography
Prepared for the Paralyzed Veterans of America, this publication examines
literature relating to pressure sores. Authors: G. White, D. Nary, K. Froehlich,
J. Steward, and R. Gutierrez.
Secondary Condition booklets
Containing consumer-friendly information on the prevention of secondary conditions affecting people with mobility impairments, these booklets include a glossary of relevant terms.
Bowel Dysfunction (in Spanish)
Chronic Pain Management (in Spanish)
Chronic Fatigue (in Spanish)
Contractures (in Spanish)
Deconditioning and Weight Gain (in Spanish)
Joint Problems (in Spanish)
Pressure Sores (in Spanish)
SCI and Aging (in Spanish)
SCI & Depression (in Spanish)
Spasticity (in Spanish)
Urinary Tract Infections (in Spanish)
SCI & Sexuality (in Spanish)
IL PHILOSOPHY AND HISTORY
Classics from the past:
A Social Psychological Perspective
An examination of the social experiment of independent living from an experimental social psychological perspective begins with the basic human need for independence is the premise of this monograph. Author: F. X. Gibbons
Disincentives to Independent Living
Our social structure is replete with
subtle, covert, and clear incentives and disincentives to shape and maintain
valued behaviors that are valued, which are examined here in this monograph
in light of the social and economic consequences associated with them. Author:
I.K. Zola
Economics and Independent Living
Drawing upon the independent living
movement and the writings of social historian Alvin Toffler, Gerben DeJong
presents an argument that economic independence is as important, and in
some circumstances more important, than more traditional health outcomes
such as performance of basic daily living activities. Author: G. DeJong
Ed Roberts: His Words, His Vision
This
9-minute, close-captioned program produced in 2003 features excerpts from
a speech delivered by Ed Roberts, considered the “father” of
independent living, in which Roberts discusses the beginning of the IL movement
and his vision of how society will be changed by it. Interspersed throughout
are contemporary still photos of disability activists by Tom Olint. Recommended
for class discussions and trainings. Please specify VHS or DVD format on order
form. $49.95, 8 ozs.
INTERNATIONAL
Identification of Exemplary European Practices Reducing Incidence of Secondary Disabilities in People with Disabilities
For one month, Glen White
visited Great Britain, Holland, and Sweden to discover best practices in
independent living and secondary disability prevention, which he discusses
in this publication. Author: G. White
MEDIA
Effective and Efficient Research Translation for General Audiences: Literature Review and Recommendations
More than 50 resources were used to
produce this synthesis of best practices used in scientific reporting and
effective mass audience outreach. Author: C. Higgins
Guidelines for Reporting and Writing About People With Disabilities
A
RTC/IL classic that reflects input from more than 100 national disability
groups and has been adopted by the Associated Press Stylebook, American
Psychological Association, and the American Association for the Advancement
of Society, this brochure offers preferred language, style, and appropriate
portrayals of people with disabilities. Cost of brochures: 1 booklet: $1
includes shipping/handling; rates for multiple copies (less shipping/handling)
are: 2 - 100: $.65 each; 101 - 1000: $.55 each; 1,001 and over: $.50
each. Postage: 2 - 15 Add: $2; 16 - 32 Add: $3.25; 33 - 49 Add:
$4.25; 50-100 Add: $5.50; 101 - 200 Add: $7; 201 - 400 Add:
$11; 401 - 600 Add: $15.50; 601 - 1000 Add: $18; orders
over 1000 add $10 per thousand. Include $2 handling charge to
each order.
An accompanying 18" x 24" poster (Your Words/Our Image) (1 lb.) that
lists negative and positive terminology in reference to people with disabilities
also is available for sale for $15 each plus a $2 handing fee ($17
total), which includes shipping. Contact us for special rates on bulk orders.
International orders will be billed actual shipping charges, plus insurance,
plus $3 handling fee. For shipments to countries where U.S. Postal Service will
not insure delivery, we will ship only if you are willing to assume responsibility
for loss. Please allow 4-6 weeks for delivery.
How-To Guide: Condensing and Translating “Researchese” for the General Public
This manual offers writing tips to package
research findings for maximum audience impact and includes numerous examples.
Author: C. Higgins
Saying the Right Things and Saying Things Right
Barriers and solutions in reaching general
audiences to present research results are discussed in this webcast. Presenters:
J. Budde and C. Higgins
"Sticks and Stones” . . . and Words CAN Hurt: Eliminating Handicapping Language
Words — both positive and negative — used
in reference to people with disabilities are discussed in this report. Authors:
A. Darrow and G. White
Writing for the Non-Researchers: Sharing Your Findings With a Larger Audience
Designed as a three-panel brochure,
this brief publication summarizes best practices of science journalism.
PERSONAL ASSISTANCE SERVICES
A Step-by-Step Guide to Training and Managing Personal Assistants: Consumer Guide
A RTC/IL best-seller, this updated manual
offers practical information on hiring, training, managing, and retaining
personal assistants. Authors: G. Ulicny, A. Adler, S. Kennedy, and M. Jones
A Step-by-Step Guide to Training and Managing Personal Assistants: Consumer Guide: Agency Guide
This manual helps center for independent
living staff assist consumers in managing personal assistants. Authors:
G. Ulicny, A. Adler, S. Kennedy, and M. Jones
PUBLIC POLICY
Mental Disability and the ADA: Public Policy in the Courtroom
Beginning with a brief overview of the
Americans With Disabilities Act, this paper explores the issues of disability,
direct threat, and reasonable accommodations as they apply to people with
psychiatric disabilities with an emphasis on relevant court decisions. Author:
M. Rempfer
Building Consumer Consensus on IL Using the Concerns Report
By asking people with mental retardation, brain injury, and psychiatric disabilities to identify their independent living needs, a method to develop interventions and accommodations that will result in increased and improved center for independent living services was illustrated. Author: J. G. Youngbauer
SERVICE PROVISION
First Impressions: Maintaining Courteous Treatment of Human Service Clients
Providing services to people with disabilities
is detailed in this resource-stocked manual. Authors: M. Johnson and S.
Fawcett.
Fundraising for Independent Living Centers
Starting off by identifying barriers
to successful fundraising and setting up basic management systems, this
manual explains incorporation, acquiring tax-exempt status, developing the
feasibility study, summary of fundraising methods, organizational structures
for fundraising, putting policy into words, and working with consultants.
Author: J. Hannah
Meshing IL With Occupational Therapy
Does occupational therapy subscribe
as a field to the IL movement and is there a role for it within a consumer-based
model?; the very philosophy of occupational therapy is one of its strongest
defenses to such accusations argues this article. Author: S. Kennedy
Serving Consumers With Psychiatric Disabilities: Common Sense Accommodations and Strategies
This resource guide provides helpful
strategies for people who work with individuals with psychiatric disabilities
in centers for independent living and other consumer-oriented agencies.
Authors: M. Rempfer, L. Smith, and S. Wendt
Strategies for Assisting People with Traumatic Brain Injuries
The purpose
of this manual is to provide a user-friendly guide for individuals assisting
people with traumatic brain injuries in home and independent living center
environments. Author: K. Adkins
Strategies for Reaching Out to Minority Individuals With Disabilities
Among the problems faced by many minority
persons with disabilities discussed in this article that originally appeared
in the 2001 Research Exchange 6(2) is the lack of coordinated attention
of many programs and professionals from multiple disciplines. Author: F.
Balcazar