
Resources: Index of Topics
Introduction - Choices Manual - Glossary on Terminology
DISCLAIMER: We have personally visited and selected all of the resources included in CHOICES. However, we cannot assure the accuracy of the resources and web sites. We hold no accountability for the content of these web sites. Moreover, web sites change hands, content and format may change on a daily basis, and telephone numbers are subject to change. The inclusion of a resource in CHOICES does not imply endorsement of the web site or resource. There are additional sources available that may not be included in this directory. CHOICES does not render medical or legal advice. The information provided through CHOICES should not be used for diagnosing or treating a health problem or for obtaining legal opinions. CHOICES is not a substitute for professional services. If you have health or legal questions, you should consult an appropriate professional.
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| Health Promotion | Spinal Cord Injury Foundations/Organizations |
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The
resources listed under each section may contain
useful
information on additional topics.
ACCESSIBLE HOUSING/MODIFICATIONS:
ABLEDATA
Informed Consumer's Guide to Accessible Housing
8630 Fenton Street Suite 930
Silver Springs, MD 20910
(800) 227-0216, (301) 608-8998; TTY: (301) 608-8912
www.abledata.com/text2/icg_hous.htm
ADAPT – Americans Disabled for Attendant Programs Today
Fighting so people with disabilities can live in the
community with real supports instead of being locked away
in nursing homes and other institutions.
201 S. Cherokee
Denver, CO 80223
(303) 733-9324
Alpha One – Housing Information
127 Main Street
South Portland, ME 04106
(800) 640-7200
http://www.alpha-one.org/index.php?page=housing
The Center for Universal Design School of Design
North Carolina State University
50 Pullen Road, Brooks Hall
Room 104, Campus Box 8613
Raleigh, NC 27695-8613
(800) 647-6777
Advocacy Training/Technical Assistance Center of the National Association of Protection and Advocacy Systems
900 2nd Street, N.E. #211
Washington, D.C. 20002
(202) 408-9514
American Association of People with Disabilities
1629 K Street NW, Suite 503
Washington, D.C. 20006
(800) 840-8844
The Association of Programs for Rural Independent Living (APRIL)
5903 Powdermill Road
Kent, OH 44240
(330) 678-7648
CyberCIL of Arizona
NCIL - National Council on Independent Living
1916 Wilson Blvd., Suite 209
Arlington, VA 22201
(703) 525-3406
U.S. Department of Justice
A Guide to Disability Rights Laws
P.O. Box 66738
Washington, D.C. 20035-6738
(800) 514-0301
www.usdoj.gov/crt/ada/cguide.htm
www.usdoj.gov/crt/ada/adahom1.htm
3425 South Clarkson Street
Englewood, CO 80110
(303) 789-8000
Fax: (303) 789-8699
www.craighospital.com/sci/educationaltracts.asp
Rancho Los Amigos National Rehabilitation Center
7601 East Imperial Highway
Downey, CA 90242
(877) RANCHO-1
http://www.rancho.org/research_journals.htm
ABLEDATA
8630 Fenton Street, Suite 930
Silver Spring, MD 20910
(800) 227-0216
www.abledata.com/Site_2/state_technology_assistance_proj.htm
The Alliance for Technology Access (ATA)
2175 East Francisco Blvd., Suite L
San Rafael, CA 94901
(415) 455-4575
Fax: (415) 455-0654
Rehabilitation Engineering and Assistive Technology Society of North America
1700 North Moore Street, Suite 1540
Arlington, VA 22209-1903
Phone: (703) 524-6686
Architectural and Transportation Barriers Compliance Board
1331 F. Street, NW, Suite 1000
Washington, D.C. 20004-111
(800) 872-2253
Centers for Medicare and Medicaid Services (CMS)
Information Clearinghouse
7500 Security Boulevard
Baltimore, MD 21244-1850
(410) 786-3000
(877) 267-2323
The Official U.S. Government Site for Medicare
Information
(800) 633.4227
Social Security Administration
Social Security Online
(800) 772-1213
State Vocational Rehabilitation Services
To locate the office in your area, look in the Blue pages of
your telephone directory under State Government or in the
White Pages under Government Agencies
ABLEDATA
8630 Fenton Street, Suite 930
Silver Spring, MD 20910
(800) 227-0216
www.abledata.com/text2/links.htm
Access Unlimited
570 Hance Road
Binghamton, NY 13903
(800) 849-2143
www.accessunlimited.com/vehicle_modification.html
www.accessunlimited.com/driver_rehab.html
Accessible Vans of America
(888) AVA-VANS; (888) 282-8267
Ford Mobility Motoring Program
P.O. Box 529
Bloomfield Hills, MI 48303
(800) 952-2248; TDD: (800) 833-0312
www.mobilitymotoringprogram.com
GM Mobility Assistance Center
100 Renaissance Center
P.O. Box 100
Detroit, MI 48265-1000
(800) 323-9935
http://www.gm.com/automotive/vehicle_shopping/gm_mobility/
Lifts For Free
7500 Ulmerton Road #23
Largo, FL 33771
(800) 377-0799
www.scooterdepot.com/reimbur.shtml
National Family Caregivers Association
10400 Connecticut Avenue #500
Kensington, MD 20895-3944
(800) 896-3650
National Information Center for Children and Youth with Disabilities
P.O. Box 1492
Washington, DC 20013-1492
(800) 695-0285
The National Spinal Cord Injury Association
8300 Colesville Road
Silver Spring, MD 20910
(800) 962-9629
www.erols.com/nscia/resource/infoitwk.html
Shriner’s Hospitals for Children
2900 Rocky Point Drive
Tampa, FL 33607-1460
(813) 281-0300
Social Security Administration
Office of Public Inquiries
6401 Security Blvd.
Room 4-C-5 Annex
Baltimore, MD 21235
(800) 772-1213
Winner on Wheels
Winners On Wheels
2842 Business Park Avenue
Fresno, CA 93727
(800) WOW-TALK; (800) 969.8255
Fax: (559) 291-3386
DURABLE MEDICAL EQUIPMENT/SUPPLIES
Care Catalogue Services
509 NE Hancock Street
Portland, OR 97212
(800) 443-7091
Health IQ
750 The City Drive, Suite 210
Orange, CA 92868
(800) 772-2661
Home Medical Equipment Answer Book
11300 Rockville Pike, Suite 1100
Rockville, MD 20852-3030
(301) 287-2700
Medship Direct
P.O. Box 956848
Duluth, GA 30095-9515
(800) 633-1565
National Healthcare Benefit Corporation
767 E. Division Street
Cadillac, MI 49601
(231) 779-1079
Health, Wellness and Aging with Disabiliy
June Isaacson Kailes
jik@pacbell.net
Rehabilitation Research and Training Center: Health and Wellness Consortium
Gloria Krahn
Oregon Health and Science University
Oregon Institute on Disability and Development
Child Development and Rehabilitation Center
Portland, OR 97207-0574
(503) 494-9557
· A Provider’s Guide for the Care of Women with Physical Disabilities & Chronic Medical Conditions
· Removing Barriers to Health Care, A Guide for Health Professionals
· Removing Barriers to Health Clubs and Fitness Facilities, A guide for Accommodating All Members, Including People with Disabilities and Older Adults
· All three of the above documents found at:
North Carolina Office on Disability and Health
Frank Porter Graham Child Development Institute
Campus Box 8185
The University of North Carolina at Chapel Hill
Chapel Hill, NC 27599-8185
(919) 966-0868; Fax: (919) 966-0862
Research & Training Center on Independent Living
4089 Dole Center
Lawrence, KS 66045-2930
(785) 864-4095
See Health Promotion listings in catalog.
The National Center on Physical Activity and Disability (NCPAD)
1640 West Roosevelt Road
Chicago, IL 60608-6904
(800) 900-8086
Job Accommodation Network
West Virginia University
PO Box 6080
Morgantown, WV 26506-6080
(800) 526-7234
President’s Committee on Employment of People with Disabilities
1331 F Street, N.W., Suite 300
Washington, DC 20004
(202) 376-6200
National Spinal Cord Injury Association
6700 Democracy Boulevard, Suite 300-9
Betheseda, MD 20871
Help Line: (800) 962-9629; (301) 588-6959
Fax: (301) 588-9414
Email: nscia2@aol.com
New Mobility Magazine
(215) 675-9133 ext. 109
www.newmobility.com/magazine.cfm
Paralyzed Veterans of America Publications
(888) 860-7244
www.pva.aa.psiweb.com/NEWPVASITE/publications/pubproductsindex.htm
PN/Paraplegia News
(888) 888-2201
www.pnnews.com/pn/newversion/frames/
Research & Training Center on Independent Living
4089 Dole Center
Lawrence, KS 66045-2930
(785) 864-4095
See catalog for booklets on secondary health conditions experienced by people with SCI.
Spinal Network
The Total Wheelchair Book
(800) 543-4116 ext.480; (310) 317-4522 ext.480
www.newmobility.com/bookstore.cfm
SPORTS ’N SPOKES
2111 East Highland Ave., Suite 180
Phoenix, AZ 85016-4702
Email: snsmagaz@aol.com
Spinal Cord Injury Information Network
The University of Alabama at Birmingham
(205) 934-3283
Fax: (205) 975-8376
619 19th Street, S. SRC-529
Birmingham, AL 35249-7300
We Magazine
(212) 931-6700
American Psychological Association
Public Information Line
(800) 374-2721
The Family Village Waisman Center
University of Wisconsin-Madison
1500 Highland Avenue
Madison, WI 53705-2280
www.familyvillage.Wisc.Edu/lib_ment.htm
National Mental Health Services Knowledge Exchange Network
PO Box 42490
Washington, DC 20015
(800) 789-2647
American Disabled for Attendant Programs Today
201 S. Cherokee
Denver, CO 80223
(303) 783-9324
disAbility Resource Center
607-S.E. Everett Mall Way, Suite 9B
Everett, WA 98208
(425) 347-5768
www.wa-ilsc.org/drcservices.html
Managing Personal Assistants, A Consumer Guide
(800) 424-8200
Email: info@pva.org
http://www.pva.org/NEWPVASITE/publications/pubs/PersAsst.htm
National Association for Home Care
228 Seventh Street, S.E.
Washington, DC 20003
(202) 547-7424
Fax: (202) 547-3540
www.nahc.org/Consumer/coninfo.html
www.nahc.org/Consumer/stassn.html
NCIL - National Council On Independent Living
1916 Wilson Blvd., Suite 209
Arlington, VA 22201
(703) 525-3406
Email: ncil@ncil.org
Research &Training Center on Independent Living
1000 Sunnyside Avenue, Room 4089
Lawrence, KS 66045-7555
(785) 864-4095
See catalog for guide on training personal assistants
Think First Foundation
5550 MeadowBrook Drive, Suite 110
Park Ridge, IL 60068
(800) THINK56; (847) 290-8600
May provide an opportunity for persons with SCI to volunteer to educate the community about prevention of SCI
RECREATION/TRAVEL/SPORTS RESOURCES
Beneficial Designs, Inc.
1617 Water Street, Suite B
Minden, NY 89423-4310
(831) 429-8447
Disabled Sports USA
P.O. Box 9780
Truckee, CA 96162
(530) 581-4161
National Sports Network
P.O. Box 47799
St. Petersburg, FL 33743-7799
(800) 699-4494
Paralyzed Veterans of America
(800) 424-8200
Shake A Leg
P.O. Box 1264
Newport, RI 02840
(401) 849-8898
American Therapeutic Recreation Association
1414 Prince Street, Suite 204
Alexandria, VA 22314
(703) 683-9420
American Therapeutic Recreation Association
1414 Prince Street, Suite 204
Alexandria, VA 22314
(703) 683-9420
Allied Services
475 Morgan Highway, P.O. Box 1103
Scranton, PA 18501-1103
(570) 348-1405
Fax: (570) 348-2909
CARF – The Rehabilitation Accreditation Commission
(520) 325-1044
Fax: (520) 318-1129
Head Injury Rehabilitation Services
4720 Lincoln Blvd., Suite 321
Marina del Rey, CA 90292
(800) 705-4477
National Model SCI Centers
The Model Spinal Cord Injury System program, sponsored
by the National Institute on Disability and Rehabilitation
Research (NIDRR], provides assistance to establish
innovative projects for the delivery, demonstration, and
evaluation of comprehensive medical, vocational, and other
rehabilitation services to meet the needs of individuals with
spinal cord injury.
The following were model systems as of March 2003.
CHECK www.ncddr.org/rpp/hf/hfdw/mscis
FOR CURRENT LISTINGS or call
(800) 266-183; (512) 476-6861
Fax: (512) 476-2286
University of Alabama at Birmingham SCI Care System
Amie B. Jackson, M.D.
UAB - Spain Rehabilitation Center
619 19th Street, S, SRC 529
Birmingham, AL 35249-7330
(205) 934-3330
Fax: (205) 975-4691
Regional SCI Care System of Southern California
Robert L. Waters, M.D.
Rancho Los Amigos National Rehabilitation Center
7601 East Imperial Highway, HB117
Downey, CA 90242-4155
(562) 401-7161
Fax: (562) 803-5623
Northern California SCI System
Tamara Bushnik, Ph.D.
Santa Clara Valley Medical Center
950 South Bascom Avenue, Suite 2011
San Jose, CA 95128
(408) 295-9896
Fax: (408) 295-9913
Rocky Mountain Regional SCI System
Daniel P. Lammertse, M.D.
3425 South Clarkson Street
Englewood, CO 80110-2811
(303) 789-8220
Fax: (303) 789-8219
Georgia Regional SCI System
David F. Apple, Jr., M.D.
2020 Peachtree Road, NW
Atlanta, GA 30309-1465
(404) 350-7591
Fax: (404) 355-7353
www.shepherd.org/sci/index.htm
South Florida Regional SCI System
Marca L. Sipski, M.D.
University of Miami, School of Medicine
1095 Northwest 14th Terrace
Miami, FL 33136
(305) 243-8187
Fax: (305) 243-3395
The New England Regional SCI System
Shanker Newsthurai, M.D.
Boston University Medical Center
One Boston Medical Center Plaza, F-511
Boston, MA 02118-2393
(617) 638-7310
Fax: (617) 638-7313
University of Michigan Model SCI System
Denise G. Tate, Ph.D.
University of Michigan Medical Center
300 North Ingalls, Room NI2A09
Ann Arbor, MI 48109-0491
(734) 763-0971
Fax: (734) 936-5492
University of Pittsburgh Model Center on SCI
Michael L. Boninger, M.D.
University of Pittsburgh
7180 Highland Drive, 151R-1
Pittsburgh, PA 15206
(412) 365-4861
Kristofer Hagglund, Ph.D.
Department of Health Psychology
One Hospital Drive, DC046.46.
Columbia, MO 65212
(573) 884-2899
Fax: (573) 884-2902
Northern New Jersey SCI System
Joel A. DeLisa, M.D.
Kessler Institute for Rehabilitation
1199 Pleasant Valley Way
West Orange, NJ 07052-1499
(973) 243-6805
Fax: (973) 243-6861
Kristjan T. Ragnarsson, M.D.
Mt. Sinai Medical Center
One Gustave L. Levy Place Box 1240
New York, NY 10029-6574
(212) 659-9340
Fax:
(212) 348-5901
Regional SCI System of Delaware Valley
John F. Ditunno, M.D.
Thomas Jefferson University Hospital
132 South 10th Street 375 Main Building
Philadelphia, PA 19107-5244
(215) 955-5580
Fax:
(215) 955-5152
Texas Regional SCI System
William H. Donovan, M.D.
The Institute for Rehabilitation & Research
1333 Moursund Avenue
Houston, TX 77030-3408
(713) 797-5946
Fax:
(713) 797-5982
Medical College of Virginia
Medical College of Virginia, Box 980661
Richmond, VA 23298-0677
(804) 828-0861
Fax: (804) 828-5704
Diana D. Cardenas, M.D.
Department of Rehab Medicine,
Box 356490
Seattle, WA 98105-6613
(206) 543-8171
Fax: (206) 685-3244
Email: dianamac@u.washington.edu
National Rehabilitation Information Center
4200 Forbes Boulevard, Suite 200
Lanham, MD 20706
(800) 346-2742
www.naric.com/naric/search/t08.html
National Spinal Cord Injury Association
Help Line (800) 962-9629; (301) 588-6959
Fax: (301) 588-9414
Email: nscia2@aol.com
PoinTIS - Point of Care, Teambased Information System
http://calder.med.miami.edu/pointis/handbook.html
Vocational Rehabilitation
See local phone directory under state offices.
National Institute of Neurological Disorders & Stroke (NINDS)
National Institutes of Health
P.O. Box 5801
Bethesda, MD 20824
(800) 352-9424
Rehabilitation Engineering Research Center on Wheeled Mobility
David M. Brienza
University of Pittsburgh
School of Health and Rehabilitation Sciences
Rehabilitation and Technology
Pittsburgh, PA 15260
(412) 383-6571
Research Information & Independent Living (RIIL)
1000 Sunnyside Avenue, Room 4089
Lawrence, KS 66045-7555
(785) 864-4095
SCI Research
www.cureparalysis.org/drs/index.html
Rehabilitation Research & Training Center
The University of Alabama at Birmingham
619 19th Street S., SRC-529
Birmingham, AL 35249-7300
(205) 934-3283
Fax: (205) 975-8376
The Wound Care Institute, Inc.
1541 NE 167th Street
North Miami Beach, FL 33162
www.medicaledu.com/wndguide.htm
Research &Training Center on Independent Living
1000 Sunnyside Avenue, Room 4089
Lawrence, KS 66045-7555
(785) 864-4095
See catalog for booklets on preventing secondary conditions.
Assistance Dogs International
c/o Canine Partners For Life
334 Faggs Manor Road
Cochranville, PA 19330
(610) 869-4902
www.chesco.com/k94life/service.htm
International Association of Assistance Dog Partners
38691 Filly Drive
Sterling Heights, MI 48310
(586) 826-3938
Service Dog Directory
1940 Soda Mountain Road
Ashland, OR 97520
(541) 482-7669
www.wolfpacks.com/serviced.htm
Support Dogs, Inc. - Training Facility
3958 Union Road
St. Louis, MO 63135
(314) 892-2554
http://members.aol.com/maxidog1/support.htm
Fertility and Adoption Resources
Sandra Welner, MD Email: Welnersmd@aol.com
The Miami Project to Cure Paralysis
PO Box 016960 (R-48)
Miami, FL 33101-6960
(800) STAND-UP; (305) 243-6001
Fax: (305) 243-6017
Sexual Health Network
3 Mayflower Lane
Shelton, CT 06484
(203) 924-4623
SPINAL CORD INJURY FOUNDATIONS/ORGANIZATIONS
Christopher Reeve Paralysis Foundation
Short Hills Plaza
636 Morris Turnpike, Suite #3A
Short Hills, NJ 07078
(800) 225-0292
Kent Waldrep National Paralysis Foundation
16415 Addison Road, Suite 550
Dallas, TX 75001
(877) SCI-CURE; (972) 248-7100
The Miami Project to Cure Paralysis
PO Box 016960 (R-48)
Miami, FL 33101-6960
(800) STAND-UP; (305) 243-6001
Fax: (305) 243-6017
The National Spinal Cord Injury Association
6701 Democracy Boulevard, Suite 300-9
Bethesda, MD 20817
(800) 962-9629
Paralyzed Veterans of America
801 18th Street, N.W.
Washington, D.C. 20006
(800) 424-8200
Steve Palermo Chapter
Kent WaldrepNational Paralysis Foundation
11350 Tomahawk Creek Parkway, Suite 200
Leawood, KS 66211
(800) 513-3700; (913) 451-3700
ABLEDATA
860 Fenton Street, Suite 930
Silver Spring, MD 20910
(800) 227-0216
The DRM Guide to Disability Resources on the Internet
(516) 585-0290
Health Care Information Resources
Spinal Cord Injury Links
www.hsl.mcmaster.ca/tomflem/spinalcord.html
National Center for the Dissemination of Disability Research Southwest Educational Development Laboratory
211 East Seventh Street, Suite 400
Austin, TX 78701-3281
(800) 266-1832
http://www.ncddr.org/rpp/hf/hfdw/mscis/
Paralysis Society of America
801 Eighteenth Street, N.W.
Washington, DC 20006-3517
(888) 772-1711; TTY: (202) 973-8422
Fax: (202) 973-8421
Paralinks
PoinTIS - Point of Care, Teambased Information System
http://calder.med.miami.edu/pointis/handbook.html
Rehabilitation Research & Training Center
The University of Alabama at Birmingham
619 19th Street S., SRC-529
Birmingham, AL 35249-7300
(205) 934-3283
Warm Springs Resource Center for People with Disabilities
909 NE Loop 410
San Antonio, TX 78209
(210) 616-0100
www.warmsprings.org/RCenter/informat.htm
Contact your local independent living center for information
about independent living skills. A list of CIL’s across the nation
can be found at www.ilru.org.
Friends’ Health Connection
(800) 483-7436
Independent Living Research Utilization
2323 South Shepherd, Suite 1000
Houston, TX 77019
(713) 520-0232
International Ventilator Users Network (IVUN)
(314) 534-0475
www.post-polio.org/ivun/index.html
Ventilator Use
www.familyvillage.wisc.edu/lib_vent.htm
Beneficial Designs, Inc.
1617 Water Street, Suite B
Minden, NY 89423-4310
(831) 429-8447
www.beneficialdesigns.com/wcseating/wcseating.html
The Family Village Waisman Center
University of Wisconsin-Madison
1500 Highland Avenue
Madison, WI 53705-2280
www.familyvillage.wisc.edu/at/wc-seating.html
www.familyvillage.wisc.edu/at/wheelchairs.html
A Guide to Wheelchair Selection: How to use ANSI/RESNA Wheelchair Standards to Buy a Wheelchair
Published by: Paralyzed Veterans of America
SCI Education and Training Foundation
801 Eighteenth Street, N.W.
Washington, DC 20006
(800) 424-8200 ext. 609
SpinLife
(800) 850-0335
The Manual Wheelchair Training Guide
Peter Axelson, Denise Yamada Chesney,
Jean Minkel, Anita Perr
Beneficial Designs
Pax Press
P.O. Box 69
Minden, NV 89423-0069
(775) 783-8822
http://www.beneficialdesigns.com/paxpress/paxpress.html
The Power Wheelchair Training Guide
Peter Axelson, Jean Minkel, Anita Perr,
Denise Yamada
Beneficial Designs
Pax Press
P.O. Box 69
Minden, NV 89423-0069
(775) 783-8822