Research and Training Center on Independent Living
Secondary Condition booklets
Also available in Spanish
These booklets contain consumer-friendly information on the prevention of secondary conditions affecting people with mobility impairments. See the center column for titles.
You may download these resources for free, or contact us for multiple copies: rtcil@ku.edu,
785-864-4095.
Taking Charge of Your Health (in Spanish)
People with disabilities face health challenges addressed in this lively booklet that also offers information on daily health choices and medical rights. Authors: K. Froehlich-Grobe and X. Ilabaca-Somoza
These recommendations focus on methods to collect information on paralysis. Authors: M. Fox, J. Rowland, D. Vernberg, K. Grobe, G. White, & A. Rosdahl.
Spinal Cord Injury: You Do Have Choices
This resource manual presents information
that will allow SCI survivors and those close to them to be informed about
acute care and the rehabilitation process and to have some sense of control
over their life.
Health Promotion for Persons With Disabilities and Prevention of Secondary Conditions: Executive Report
Results from this randomized-controlled clinical trial that assessed the effectiveness of an intervention over six months to promote physical activity by women with mobility impairments are presented in this report. Authors: G. White, S. Figoni, K. Froehlich, J. Marquis.
Exercise for People With Disabilities: Getting Started on Your Fitness Plan
With useful
strategies to become more physically active and ways to eliminate barriers to
exercise, this manual discusses the five activity categories—aerobic exercise, muscular strength and endurance, flexibility, weigh-bearing exercise, and skill-related exercise—and
what can be done for exercise in each area. Authors: K. Froehlich, S. Figoni,
T. Chase, L. Gonzales, C. Thompson, D. Nary, and G. White.
Home Physical Activities Programs for People With Physical Disabilities
Shown in this how-to guide is what you
need to know to devise a low-cost, home-based, customized physical activity
program for people with physical disabilities to boost their endurance and
strength for independent living. Author: D. Nary
In-Home,
Physical Activity, and Independent Living: What’s the Connection
Specific research projects involving home physical activity programs are discussed
in this transcript of a 2002 webcast. Presenters: Katherine Froehlich Grobe
and Dorothy Nary
Living by Chance Not Choice: Stories of Kansans Affected by Budget Cuts
This booklet contains the stories and photos of 35 Kansans with disabilities and explains how cuts to Medicaid HCBS programs and other services endangers the independence, full participation, and in some situations, the lives of people with disabilities. View at http://www.silck.org/LBC1.htm
Partnering With Public Health: Funding and Advocacy Opportunities for CILs and SILCs
A former director of the Office of Health and Disability at the Massachusetts Department of Public Health, discusses how CILs and SILCs can use funding from the Centers for Disease Control and partnerships with public health agencies to provide innovative programs promoting the health of people with disabilities. Author: L. Rauscher
Pressure Ulcer Review: Selected Annotations, Critiques, and Bibliography
Prepared for the Paralyzed Veterans of America, this publication examines
literature relating to pressure sores. Authors: G. White, D. Nary, K. Froehlich,
J. Steward, and R. Gutierrez.
Information for CILs:
What CILs Need to Know About People With Chronic Fatigue SyndromeSecondary Condition booklets
What CILs Need to Know About People With Fibromylagia
What CILs Need to Know About People With Multiple Chemical Sensitivity
Containing consumer-friendly information on the prevention of secondary conditions affecting people with mobility impairments, these booklets include a glossary of relevant terms.
Bowel Dysfunction (in Spanish)
Chronic Pain Management (in Spanish)
Chronic Fatigue (in Spanish)
Contractures (in Spanish)
Deconditioning and Weight Gain (in Spanish)
Joint Problems (in Spanish)
Pressure Sores (in Spanish)
SCI and Aging (in Spanish)
SCI & Depression (in Spanish)
Spasticity (in Spanish)
Urinary Tract Infections (in Spanish)
SCI & Sexuality (in Spanish)






