Research and Training Center on Independent Living

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Secondary Condition booklets

Also available in Spanish

These booklets contain consumer-friendly information on the prevention of secondary conditions affecting people with mobility impairments.

See the center column for titles.

You may download these resources for free, or contact us for multiple copies: rtcil@ku.edu,
785-864-4095.
 

 

 

 


Products for Independent Living:

Health Issues, Including Secondary Conditions



Taking Charge of Your Health (in Spanish)
      People with disabilities face health challenges addressed in this lively booklet that also offers information on daily health choices and medical rights. Authors: K. Froehlich-Grobe and X. Ilabaca-Somoza

Executive Summary: Developing an Action Plan to Improve the Quality and the Quantity of Data About Paralysis.
      These recommendations focus on methods to collect information on paralysis. Authors: M. Fox, J. Rowland, D. Vernberg, K. Grobe, G. White, & A. Rosdahl.


Spinal Cord Injury: You Do Have Choices

      This resource manual presents information that will allow SCI survivors and those close to them to be informed about acute care and the rehabilitation process and to have some sense of control over their life.

Health Promotion for Persons With Disabilities and Prevention of Secondary Conditions: Executive Report
      Results from this randomized-controlled clinical trial that assessed the effectiveness of an intervention over six months to promote physical activity by women with mobility impairments are presented in this report. Authors: G. White, S. Figoni, K. Froehlich, J. Marquis.

Exercise for People With Disabilities: Getting Started on Your Fitness Plan
      With useful strategies to become more physically active and ways to eliminate barriers to exercise, this manual discusses the five activity categories—aerobic exercise, muscular strength and endurance, flexibility, weigh-bearing exercise, and skill-related exercise—and what can be done for exercise in each area. Authors: K. Froehlich, S. Figoni, T. Chase, L. Gonzales, C. Thompson, D. Nary, and G. White.

Home Physical Activities Programs for People With Physical Disabilities
      Shown in this how-to guide is what you need to know to devise a low-cost, home-based, customized physical activity program for people with physical disabilities to boost their endurance and strength for independent living. Author: D. Nary

In-Home, Physical Activity, and Independent Living: What’s the Connection
      Specific research projects involving home physical activity programs are discussed in this transcript of a 2002 webcast. Presenters: Katherine Froehlich Grobe and Dorothy Nary

Living by Chance Not Choice: Stories of Kansans Affected by Budget Cuts
      This booklet contains the stories and photos of 35 Kansans with disabilities and explains how cuts to Medicaid HCBS programs and other services endangers the independence, full participation, and in some situations, the lives of people with disabilities. View at http://www.silck.org/LBC1.htm

Partnering With Public Health: Funding and Advocacy Opportunities for CILs and SILCs
      A former director of the Office of Health and Disability at the Massachusetts Department of Public Health, discusses how CILs and SILCs can use funding from the Centers for Disease Control and partnerships with public health agencies to provide innovative programs promoting the health of people with disabilities. Author: L. Rauscher

Pressure Ulcer Review: Selected Annotations, Critiques, and Bibliography
      Prepared for the Paralyzed Veterans of America, this publication examines literature relating to pressure sores. Authors: G. White, D. Nary, K. Froehlich, J. Steward, and R. Gutierrez.

Information for CILs:

What CILs Need to Know About People With Chronic Fatigue Syndrome
What CILs Need to Know About People With Fibromylagia
What CILs Need to Know About People With Multiple Chemical Sensitivity
Secondary Condition booklets
       Containing consumer-friendly information on the prevention of secondary conditions affecting people with mobility impairments, these booklets include a glossary of relevant terms.
Bowel Dysfunction (in Spanish)
Chronic Pain Management (in Spanish)
Chronic Fatigue (in Spanish)
Contractures (in Spanish)
Deconditioning and Weight Gain (in Spanish)
Joint Problems (in Spanish)
Pressure Sores (in Spanish)
SCI and Aging (in Spanish)
SCI & Depression (in Spanish)
Spasticity (in Spanish)
Urinary Tract Infections (in Spanish)
SCI & Sexuality (in Spanish)

The University of Kansas prohibits discrimination on the basis of race, color, ethnicity, religion, sex, national origin, age, ancestry, disability, status as a veteran, sexual orientation, marital status, parental status, gender identity, gender expression and genetic information in the University’s programs and activities. The following person has been designated to handle inquiries regarding the non-discrimination policies: Director of the Office of Institutional Opportunity and Access, IOA@ku.edu, 1246 W. Campus Road, Room 153A, Lawrence, KS, 66045, (785)864-6414, 711 TTY.